Cancer
There is no evidence that Interstitial Cystitis increases the risk of bladder cancer. However, the long-term effects of Interstitial Cystitis require further observation and research.
Pregnancy
Researchers have little information about pregnancy and Interstitial Cystitis, but believe that the disorder does not affect fertility or the health of the fetus. Some women have a remission from Interstitial Cystitis during pregnancy, while others have more pain and pressure during the third trimester, possibly due to the weight of the fetus on the bladder.
Working
Symptom flare-ups that result in frequent absences from work may make it difficult to get or keep a job. The Social Security Administration provides information on Social Security Disability benefits. The National Organization of Social Security Claimants' Representatives can refer you to a lawyer experienced with Social Security claims. (See "Other Resources.")
Coping with Interstitial Cystitis
The emotional support of family, friends, and other people with Interstitial Cystitis is very important in helping patients cope with the disorder. Studies have found that Interstitial Cystitis patients who learn about the disorder and become involved in their own care do better than patients who do not. The Interstitial Cystitis Association can provide the address and phone number of the nearest support group. (See "Other Resources.")
Other coping tips:
- Find a health care team that is sympathetic, helpful, and receptive.
- Understand that your health care team does not know all the answers and may be as frustrated as you are.
- Don't become isolated from family and friends.
- Involve your family in treatment decisions.
- Do not allow Interstitial Cystitis to become the center of your life.
- Try to put Interstitial Cystitis in perspective -- worse could happen.
- Talk to other people with Interstitial Cystitis about their experiences and ways of coping.
- Trust yourself.